If you have a fundraising, social or other Rett Syndrome related event you'd like listed on the MRSF website, please contact the webmaster so we can get the word out!

** Upcoming Events! **

2020 Rett Education Day

Saturday April 4th, 2020

8:00am - 5:30pm

10 River Park Plaza, St. Paul MN


Rett Syndrome Education Day, April 4, 2020: cancelled until further notice due to the Coronavirus outbreak and guidelines set by Gillette Children's Specialty Clinic, our co-sponsor.

Official Notice:

As news continues to develop related to COVID-19, the disease caused by the novel coronavirus, Gillette Children’s is taking any and all steps needed to ensure the safety of our patients and employees. In an effort to adhere to public health recommendations and community standards, Gillette Children’s is no longer permitting large events or meetings larger than 10 people effective now – April 30. Unfortunately, that means that we can’t host Rett Syndrome Education Day at River Park Plaza on Saturday, April 4. I wanted to get this message out so that you have plenty of time to cancel hotel rooms, travel plans, etc.


If you have reservations at the Drury Inn, please call and cancel your reservations. No cancelation penalties will apply. 1-800-325-0720

Please stay tuned as we will be having a conference call early next week to discuss options (such as rescheduling) and will keep everyone informed.


Families and caregivers of individuals who have Rett Syndrome are invited to attend this free event. We are here to support and educate you along the journey to finding a cure. 


Click here to register

Raisin' for Rett 2020 Benefit Gala

Friday April 24th 5-10pm

Hotel Northland - 304 N Adams Street, Green Bay, Wisconsin

If you are near the Green Bay area join our allies in the fight against Rett (Raisin' for Rett) for their 1st annual fundraiser!  The night will be a nod to the beautiful Hotel Northland and have a 1920s feel. It will include a buffet dinner, champagne, wine, and a jazz trio. Be ready to participate in some fun raffles and bid on some amazing auction items!  More information can be found at their website:!

Midwest Rett Syndrome Foundation

PO Box 43155

Brooklyn Park, MN 55443

Phone: (651) 398-6621


  • Facebook Social Icon

©2017 by Midwest Rett Syndrome Foundation

501 (c) (3)