National / Regional Resources
Rettsyndrome.org
Rettsyndrome.org is a national foundation whose mission is to accelerate full spectrum research to cure Rett syndrome and empower families with information, knowledge, and connectivity. A great resource for in depth information about Rett syndrome, clinical trial information and national research efforts.
Gillette Children’s Specialty Healthcare
Gillette is one of 14 clinics around the country designated by Rettsyndrome.org as a Rett syndrome Center of Excellence. Gillette’s team of doctors offers our girls optimal clinical management and is an integral partner in national research efforts.
Hope Kids
HopeKidsprovides ongoing events, activities and a powerful, unique support community for families who have a child with cancer or some other life-threatening medical condition. We surround these remarkable children and their families with the message that hope is a powerful medicine.
Team IMPACT
By providing a safe, supportive and encouraging environment for a child and their family to connect with a college athletic team and local campus community, Team IMPACT can fill the void left when traditional support systems are lacking or have negative implications.
myTEAM TRIUMPH
The mission of myTEAM TRIUMPH is to enhance the health and well-being of individuals with disabilities by fostering lasting, authentic relationships through the teamwork environment of endurance athletics.
Make-A-Wish Foundation
Make-A-Wish creates life-changing wishes for children with critical illnesses.
Rettsyndrome.org is a national foundation whose mission is to accelerate full spectrum research to cure Rett syndrome and empower families with information, knowledge, and connectivity. A great resource for in depth information about Rett syndrome, clinical trial information and national research efforts.
Gillette Children’s Specialty Healthcare
Gillette is one of 14 clinics around the country designated by Rettsyndrome.org as a Rett syndrome Center of Excellence. Gillette’s team of doctors offers our girls optimal clinical management and is an integral partner in national research efforts.
Hope Kids
HopeKidsprovides ongoing events, activities and a powerful, unique support community for families who have a child with cancer or some other life-threatening medical condition. We surround these remarkable children and their families with the message that hope is a powerful medicine.
Team IMPACT
By providing a safe, supportive and encouraging environment for a child and their family to connect with a college athletic team and local campus community, Team IMPACT can fill the void left when traditional support systems are lacking or have negative implications.
myTEAM TRIUMPH
The mission of myTEAM TRIUMPH is to enhance the health and well-being of individuals with disabilities by fostering lasting, authentic relationships through the teamwork environment of endurance athletics.
Make-A-Wish Foundation
Make-A-Wish creates life-changing wishes for children with critical illnesses.
State Resources
State Human Services Departments
Each state’s Human Services Department provides essential services to the states most vulnerable residents to ensure that seniors, people with disabilities, children and others meet their basic needs and have the opportunity to reach their full potential.
The Arc
The Arc is the largest national community-based organization advocating for and with people with intellectual and developmental disabilities and serving them and their families. They provide information, assistance, education, and public policy leadership
Midwest Websites
Illinois - https://thearc.org/chapter/the-arc-of-illinois/
Iowa - https://thearc.org/chapter/the-arc-of-iowa/
Minnesota - https://thearc.org/chapter/the-arc-minnesota/
North Dakota - https://thearc.org/chapter/the-arc-of-north-dakota-inc/
South Dakota - https://thearc.org/chapter/south-dakota/
Wisconsin - https://thearc.org/chapter/the-arc-wisconsin/
Each state’s Human Services Department provides essential services to the states most vulnerable residents to ensure that seniors, people with disabilities, children and others meet their basic needs and have the opportunity to reach their full potential.
- Illinois - https://www.dhs.wisconsin.gov/
- Iowa - https://dhs.iowa.gov/
- Minnesota - https://mn.gov/dhs/
- North Dakota - http://www.nd.gov/dhs/
- South Dakota - https://dhs.sd.gov/
- Wisconsin - https://www.dhs.wisconsin.gov
The Arc
The Arc is the largest national community-based organization advocating for and with people with intellectual and developmental disabilities and serving them and their families. They provide information, assistance, education, and public policy leadership
Midwest Websites
Illinois - https://thearc.org/chapter/the-arc-of-illinois/
Iowa - https://thearc.org/chapter/the-arc-of-iowa/
Minnesota - https://thearc.org/chapter/the-arc-minnesota/
North Dakota - https://thearc.org/chapter/the-arc-of-north-dakota-inc/
South Dakota - https://thearc.org/chapter/south-dakota/
Wisconsin - https://thearc.org/chapter/the-arc-wisconsin/
Minnesota Only
Courage Kenny Rehabilitation Institute
Courage Kenny Rehabilitation Institute, part of Allina Health, provides a wide range of inpatient and outpatient rehabilitation and community services.
Minnesota Help
Minnesota Help is a resource database containing information on the community services individuals and communities need to sustain and improve their daily lives – health care and childcare, job training, education and recreation, retirement, disability and social service information.
Help Me Grow Minnesota
Help Me Grow provides resources for families to understand developmental milestones and learn if there are concerns. This helps families take the lead in seeking additional support or referring their child for a comprehensive, confidential screening or evaluation at no cost.
PACER Center
Through more than 30 projects, PACER provides individual assistance, workshops, publications, and other resources to help families make decisions about education and other services for their child or young adult with disabilities.
Courage Kenny Rehabilitation Institute, part of Allina Health, provides a wide range of inpatient and outpatient rehabilitation and community services.
Minnesota Help
Minnesota Help is a resource database containing information on the community services individuals and communities need to sustain and improve their daily lives – health care and childcare, job training, education and recreation, retirement, disability and social service information.
Help Me Grow Minnesota
Help Me Grow provides resources for families to understand developmental milestones and learn if there are concerns. This helps families take the lead in seeking additional support or referring their child for a comprehensive, confidential screening or evaluation at no cost.
PACER Center
Through more than 30 projects, PACER provides individual assistance, workshops, publications, and other resources to help families make decisions about education and other services for their child or young adult with disabilities.